Tuesday, January 29

Nothing Has Changed; Yet Everything is Different


slightly unbalanced
a single word rocks my world
that word: autism


  1. Oh, Jenn. I don't even know what to say. I wish I could see your face and give you a hug and just be there to listen to everything you want to say about this.

    Please know that I am thinking of you.

  2. Oh, sweetie! Major, big, HUGE (((HUGS))) to you and to everyone. You are all in my thoughts. And if you need it, ask.

    It's trite, I know, to repeat all the platitudes but you HAVE to know that I - and everyone here - means every one of them from the bottom of our hearts.

  3. Wendy, I came by to ask if you were feeling meme-ish. If so, I have tapped you for one. "Loves meme, loves meme not" can be found here:


    And then I read that one word: autism. I am so astounded by the prevalence of autism these days and, even though I'm reading and trying to understand a bit about it, I feel so ignorant.

    We, your readers and friends, are here for you. We are holding your hand and keeping you in our thoughts and prayers. Like Leslie, I'd give you a hug in person, if I were there. Meanwhile, here's a cyber-hug:

    {{{{{{ Jenn }}}}}}

    Sent to you with love and caring.

  4. oh, hon. big hugs. and thoughts. that's all I can do at this moment from here, but if you need more just ask.

  5. Jenn it's such a big word for a little one to carry on his shoulders. My nephew is also autistic.

    We're here for you.

  6. Wendy? I said "Wendy"? Don't I know your name? Apparently not. Maybe, here in the "barefoot kind of gal club" we are allowed to pretend to be someone else, occasionally? Okay ... your turn ... call me a name.

  7. (((((Jenn))))) Sweetie, I wish there were something I could say or do to help you. As trite as it sounds you know my email and how to find me on IM. If you ever want to talk on the phone I'm game for that too.

    What a hard bit of news to get, but at least now you know and can plan a way to move forward. A single word does not change who you are, who he is or who your family is. Just remember that.

  8. Sometimes it helps for someone to just say "Everything will be ok."

    And everything will be ok.

  9. You have more power than a word does, Jenn. Knowing the word gives YOU the power.

  10. oh gosh, this is a message that I didn't expect in my feed reader.

    I know feel the need to say something really meaningful, something to cheer you up, to support you and to encourage you, to make you laugh.

    But it's silly to search for the perfect words as a reaction. I just hope you are ok.

    Out of all your posts I got to know you as a great person full of energy, humor and love for others. It always seems to be so fun to be in your family.
    Always realise you are a great mom and a great partner and this news does not change anything as you stated. Nothing has changed! You can only get more informed and get more specific help for supporting your son. The only thing that has been changed is that now you know and this knowledge can help you to even parent him in a way that is more effective for him. But the most important part is your love for him...that is a constant :)

    I wish I could give you a big hug, that is so much better than all my ramblings up here. give me a call if you'd like that or search me on skype or so (my nickname there is 'myfirstnamemyfamilyname'1000)

    Oh and if it matters, only you could break this news in such a concise sensitive moving way! I am jealous for your writing skills.

  11. Like you said, nothing has changed--that's the same gorgeous, precious wee boy...everything is different--you'll see the world differently, but it's a wonderful world.

    Lots of hugs from another mama who heard that word and felt the world spin one day in 1996...lots of hugs.


  12. Oh, Jenn - huge, huge hugs. As others have said, though, the field of research is increasing exponentially - and with you for a mom, Andrew's going to be just fine.

  13. That's a tough word to face, and my heart is with you today. I can't imagine a more loving and supportive family, though. And remember, he's a DANCER!

    Thinking about you...

  14. Oh my, I really don't know what to say, I can only wish you a lot of strength and I hope everything will be okay.

    Ontzettend veel sterkte, ik hoop dat alles goed komt. Niets is anders. Een naam verandert niets.

  15. I wish you and your family all the luck in the world. Please continue to post on this difficult subject so others know that they are not alone.

  16. Hi Jenn,
    We are thinking of you and your family,
    Your new Colorado friends,
    Jody and Jeremy

  17. I have been not so around lately..and just read this...you're strong!

    Sending happy thoughts...

    and a huge


  18. Jenn I love you!!! Hold on to every moment! Please let me know when you are ready to talk and how I can help - you KNOW I am here and I will find you every bit of help I can!!! Please remember, he is and will always be - your boy!!!

  19. We'll hold a close thought for all of your family to find your way successfully, together. All our best wishes for you.

  20. Jenn,
    Being British these things are hard for me to say face to face but here in cyber space i can let it flow.... i couldn't agree more with the person that wrote "you have more power than a word"
    getting to know you and Andrew has been such a privilege for me you have touched my life in the best most precious way, now i know the inner you i know what a wonderful life you will give your son. There are no walls you cannot and will not climb and no fights you will shy away from no child could ask more from their mum. Drew is a blessed child in so many ways.
    All this diagnosis does is give you fuel to make your fires burn more ferociously then ever!
    It is an honour for me to teach your son and for that i thank you.
    Sending as much love as it is appropriate for a british person to express!! (oh hell lets go all american.... GEEZ I LOVE YA HONEY!) ;)
    Kate xxxxxx

  21. Jenn,

    sam was diagnosed twice and yet life is great...he is great. So, remember that Andrew is the same as he was before....you are right. It is what helped me with Sam.

  22. Oh Jenn, we talked about this privately, an you know I support you 100%.

  23. I can only add my own virtual hug and comfort to you.

  24. Jenn,

    Love you much. Thinking of you.

  25. Jenn, I agree 100% with Kate. Andrew was blessed to be given such an awesome mom, awesome as in, I'm in awe, not in "radically awesome". (though you are that too.)
    Since we met I have known you to take on a challenge and come out the other side head high and no regrets.
    And as far as my little friend Andrew...What can I say? I love that kid! Blessings and gifts come in all shapes, sizes and diagnosis.
    Hugs and kisses to the family!!!

  26. What? Did I miss something here? When did you find out? I remember you talking about concerns with his speech development but the last I remember reading he was doing well with that?

    I don't know what to say...hugs to you and your family. Although I have not walked this road, there are many, many out there walking it so I am sure you will have lots of support! I love hearing your stories about Andrew - he is such a cutie!